Whipple procedure anyone?

Whipple procedure anyone? Together we will beat cancer About cancer Cancer types Cancers in general Causes of cancer Coping with cancer Health Professionals Get involved Donate Find an event Volunteer Do your own fundraising More… Our research By cancer type By cancer topic Near you By Researcher More… Funding for researchers Research opportunities Our funding […]

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Whipple procedure anyone?

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12 posts since

8 Aug 2017

Hi, I’ve just joined and was wondering if anyone knows anything about this type of surgery? My husband has just had it to deal with a malignant duodenal ulcer, which we know is a rare type of cancer but its all very new to us and everything has happened so fast. Any help or advice regarding enzyme therapy tablets (Creon) in particular – and good food choices (I cook everything and anything from scratch) would be very much appreciated. Thank you.

5933 posts since

15 Jul 2010

 

Hi Rosie,

Welcome to Cancer Chat. You will find this a useful resource for advice and support from people who have had  first-hand experience of what your hubby is going through..

I am afraid that I know nothing about Whipples Procedure, but if you press the search button on the blue band at the top of this page and put Whipples Procedure in the search box, this will bring up previous posts on this topic which you might find helpful. There is a good response there from one of the nurses, which I’m sure will help.. You can do the same for Creon and Food options.

This should also introduce you to others who have had this procedure and give you contacts who should be able to answer some of your questions.

Do please keep us updated on how your husband gets on along his cancer journey. There is always someone here to talk to whenever you want to chat.

Kind regards,

Jolamine xx

 

365 posts since

10 Mar 2015

12 posts since

8 Aug 2017

Hi Jolamine

Thank you for taking the time to reply and for the useful info – I’ll have a look via the search facility. It’s good to know there are people to talk to!

Rosie x

 

12 posts since

8 Aug 2017

Hi River56

20 years ago! Wow, that’s amazing. Do you mind me asking what type of cancer he had? 

My husband’s been out of hospital two weeks now and has healed really well (the bits we can see) and has been gradually trying lots of different – most of which he seems able to tolerate well. He’s only eating small amounts but is coping with the Creon and taking about 12 or so capsules a day. Does that about nal? I guess everyone is different depending on the operation. I’m only asking because he’s having Creon as they removed half his pancreas – so it’s replacing the enzymes that it would have produced, the same as your Dad (?). It’s so good to hear of someone who has had this operation and then managed the food/Creon balance and got on with their life.

Thank you for the reply, it really does help.

 

365 posts since

10 Mar 2015

Hi Rosie Dad had a tumour that had grown round his tubes and had fused them together. When they did the surgery they could not remove all of it. They did remove part of his pancreas and all his gallbladder. He did have problems after a few years with this was caused by fluid leaking into the left by the gallbladder. He had antibiotics at home to take when the symptoms started (high temperature and shaking). Dad died aged 82 but not from cancer that was over 3years ago.

 

9 posts since

8 Aug 2018

Hi Rosie.

I hope you and your hubby are well now?

I just wondering if anyone else had this after whipple?

I am SO scared xx

12 posts since

8 Aug 2017

Hi Daddykins

I’m really sorry to hear about your Dad and I hope he’s not in too much pain. It s like the medical team need to get on top of his scan quickly so you can see what’s going on. My husband didn’t have the same problems as your Dad but his cancer had already spread to his liver when we got the results after his Whipples op. He has had several cycles of chemo over many months and is currently on Capecitabine which is a tablet f of chemo, although this may stop shortly as we’ve been referred to Guy’s for clinical trials. His cancer is now in four different places and he is on continuous morphine and amytriptyline to help manage his pain. Do not despair! We are living with cancer and still doing everything we can to enjoy our time together and with our family. Last week we had a family holiday in Wales and Doug (my husband) played 18 holes of golf with our 3 sons! It’s a tough time and each day brings its own challenges but we keep tackling things head on and refuse to give up on life and love. I hope you have support to help you to cope, whether it comes from family, friends or both – but do draw these people close around you and don’t be afraid to ask for help when things get tough. Most people really do mean it when they offer to help and appreciate the chance to do something for you and your Dad, no matter how small, I think it helps everyone to deal with the awful situation we find ourselves in. Good luck to you and your Dad and I really hope you both get the care and support you need.

Hugs  

Rosie x

51 posts since

12 Aug 2018

My husband had whipple op for duodenal cancer last December and recovered well. Taking creon and omeprazole. Unfortunately the cancer reoccurred in his remaining pancreas and is now inoperable. Having chemo now. If you are offered adjuvant chemo I would have it. My husband was told he didn’t need it. Can’t help wondering if he had started chemo before they found it had returned it might have mopped up the cancer cells before they increased 

51 posts since

12 Aug 2018

You must be really worried and scared. I am too. My husband had Whipples last December but only had about three months before being told it was . Very soon after his op. It is so worrying and we seem to be always at the doctors or hospital. Having chemo now and hoping it will shrink his tumour. Cancer is a very cruel disease. You have so much to cope with at the moment. Wishing you all the best

1 posts since

16 Aug 2018

Hi there.  Just joined and saw your post.  I had a Whipple on 22 June to remove part of my pancreas, bile duct, duodenum, and gall bladder.  I had a tumour on my pancreatic wall.  I was in hospital 9 days and I’m now recovering slowly at home.  Everything happened very fast for me too, but not having the operation wasn’t an option.  It’s hard work but with a combination of slowly getting my appetite , and taking the enzymes (6 a day with each meal) I have managed to put on a little bit of weight.  I also have to inject insulin once a day.  I eat a lot of nuts, fruit, and I am ing dairy products.  lots of water, and above all, rest, rest, rest. And keep taking the enzymes.

I think everyone is different but if your surgeon believes your husband has the strength to get through a Whipple procedure, then go for it.  I’m now on phase 2 which is chemo for the next 6 months (to mop up any cells the surgeon couldn’t see), but I believe I’m giving myself the best chance of getting through this.

Hope this helps.

12 posts since

8 Aug 2017

Hi Suenmags

s like we’re in a very similar situation. Doug’s op was in July ‘17 and the cancer had spread to his liver within 3 months. He had IV Cisplatin and Gemcitabine over a six month period which seemed to hold things at bay but then it spread further to his lungs (tiny nodules at the moment) and also resurfaced at the original site but the worst affected area is around his navel where a tumour has developed and is growing – the oral chemo, Capecitabine doesn’t seem to work on it.  Is this the same drug(s) as your husband has had? You mention adjuvant chemo, which is, I think, what the clinical trial at Guy’s hospital involves (docetaxel?) Has your husband has this and has it been effective? I think we’re going to go with the trial if all the preliminary tests are OK. It’s a big time commitment but hopefully it’ll be worthwhile. Our main problem right now is getting his pain under control and keeping it at a level that he can still get on with doing the things he wants to. How is your husband doing and is he having a lot of pain? As you say, it’s such a cruel disease. I really feel for you – so many mixed emotions as a partner and carer, it has put us through all kinds of hell. Sending warm wishes and strength to you both, all the best, Rosie

20 posts since

19 Nov 2015

Hi Rosie, my husband had the whipple procedure done 3 years ago for pancreatic cancer. Unfortunately he only made it a year after. He signed up on Whipple Warriors site and found lots of people there with good infation on life after whipple. It might help your husband as well as yourself.

Take care,

Cindy

51 posts since

12 Aug 2018

Hello Rosie

Don didn’t meet criteria for any trials. His first chemo session wiped him out so Monday’s is lower doses. Keep trying different pain killers as he is in pain. I’ll have to wait and see if that is better and if the cancer does shrink. At the moment struggling to get through the days. Good luck with the trial hope it works for your husband. My brother keeps saying to me belie Winston Chutchill  KBO keep buggering on. What else can we do

All the best suenmags

1 posts since

9 Dec 2018

my mum has the whopper in sept 2018 and they’ve found cancer markers. 12 weeks later and numerous complaints from us (as s been growing) they’ve now found secondary cancer 

the ment has been disjointed, cancelled 3 times with 8hr wait to see doctor last week 

it’s a farce and I feel she’s being missed 

the stress is just too much and she’s rapidly going down hill (age 78 but usually fighting fit!) 

 

any advice welcome 

based in Hillindgon NHS trust 

Whipple procedure anyone?


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Happiness is for those who plan well and pursue. A profound among us have been proven those who have true dream to live for likely REALIZED IT. It is just simply the person working toward the DREAM days and night until accomplishment. There is a phrase of efficiency a head of you. Steps and obstacles at first seem tremendous. However, just with some times those difficult steps and challenges are so easy performance for you. There are also plenty of tools including VISUALIZATIONS and helps are around you.

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