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Prevention & early diagnosis programme

Prevention & early diagnosis programme

The Prevention and Early Diagnosis Programme supports the Macmillan outcome, ‘I was diagnosed early’. This outcome was identified in Macmillan’s Cancer in the UK 2014 State of the Nation report, as one of the nine biggest issues that matter most to cancer patients in the UK today.

Our work pioneers initiatives to ensure all people affected by cancer can recognise this outcome by 2030. It includes projects to help promote awareness of the benefits of earlier recognition, as well as improve referral and early diagnosis of cancer. We’re also developing tools to help GPs and primary care professionals.

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The cancer SEA toolkit and its resources have been developed by Macmillan, RCGP and NHS England to support GPs, practice staff and commissioners in conducting high quality cancer SEAs with the aim of improving patient outcomes in the early diagnosis of cancer.

Cancer SEAs prompt a GP to reflect on their diagnosis, and identify any potential improvements including issues with practice systems, hospital systems or cancer referral pathways. They can also encourage improvements in important areas such as proactive safety-netting.

Find out more and gain access to training resources and guidance, fictional examples of cancer SEAs and background information.

This guide aims to support GPs who are involved in implementing the updated NICE NG12 guidelines for suspected cancer: recognition and referral. The guidelines were released in June 2015 and cover England and Wales. This guide includes top tips on how to develop local processes to implement the guidelines using relevant examples, the learning from which could apply to all four nations. It also sets out how Macmillan can support you throughout this process.

Download the guidelines [PDF].

The Rapid Referral Guidelines [PDF] is a summary of the 2015 update of the NICE NG12 guideline for suspected cancer: recognition and referral, whose remit covers England and Wales. This interactive PDF, designed by GPs for GPs is organised by tumour site and is designed to provide practical support, guidance and referral recommendations. This toolkit supports all of the recommendations in the NICE guideline on suspected cancer: recognition and referral, apart from those relating to specific childhood cancers. For more information on this endorsement, please see the implementation section of the NICE website.

For GPs based in Scotland, the Scottish Referral Guidelines are available to download onto your computer, or via a mobile app.

Download the rapid referral guidelines:

The Cancer Decision Support (CDS) tool is designed to support GPs in their clinical decision making and encourage them to think cancer by displaying the risk of a patient having an as yet undiagnosed site-specific cancer. The risk is calculated via one of two algorithms and is based on read coded information from the patient file including symptoms, medical history and demographic data. For more information about the CDS tool visit our CDS webpage.

The ACE programme is an NHS England led early diagnosis of cancer initiative, supported by Macmillan and Cancer Research UK. The programme began in June 2014 and ‘Wave 1’ of the programme will run until late 2016. ‘Wave 2’ is expected to run until the end of 2017.

ACE seeks to develop the knowledge base on early diagnosis in order to identify and evaluate good practice, which can reduce system delays and improve early diagnosis of cancer. ACE supports the NHS outcome “preventing people from dying prematurely”.

The ACE programme:

For further information, please visit our ACE programme webpage

Alternatively, email preventionanddiagnosis@macmillan.org.uk

The GP referral styles project looked at the different referral styles of GPs, then identified tools and interventions that support their style of referral. The project was piloted with GPs in Bedfordshire and Luton. We have written up the findings from the evaluation and are looking into ways in which we can share and utilise the learning to support GPs in the recognition and referral of suspected cancer. If you would like a copy of the project findings, please email us.

Enhance your skills and knowledge through e-learning modules, face-to-face courses, events and toolkits.

Visit Learn Zone

Order or download free, reliable information for the people you support. Our booklets cover signs and symptoms, diagnosis, cancer types, treatments and living with cancer. There is also merchandise, signage and everyday essentials.

Visit be.Macmillan

Four in five people are worse off financially because of their cancer diagnosis. Please tell your patients that we can help with guidance on financial planning, mortgages, accessing pensions and insurance and provide advice on benefits they may be entitled to.

Find out more

Follow us on Twitter to stay up to date with the latest news from the Macmillan Prevention and Diagnosis Programme.

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Read Imogen’s blog about her experience as a Macmillan support line volunteer. She highlights the benefits of talking about cancer and looks at some of the different ways people can start talking.

If you’ve just joined the Community and aren’t sure where to start, this is the group for you. Tell us what brings you here, and don’t be afraid to ask questions. Someone will be on hand to welcome you and point you in the right direction.

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We’re here to provide physical, financial and emotional support. So whatever cancer throws your way, we’re right there with you.
Contact us.

© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: 668265007

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© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: 668265007

We make every effort to ensure that the information we provide is accurate and up-to-date but it should not be relied upon as a substitute for specialist professional advice tailored to your situation. So far as is permitted by law, Macmillan does not accept liability in relation to the use of any information contained in this publication or third party information or websites included or referred to in it.

Prevention & early diagnosis programme

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