Tripple Negative Breast Cancer
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10 posts since
5 Feb 2020
Mums just been diagnosed with tripple begative Brest cancer, im confused im told by the internet and some people that its not good news but the doctors are saying they are looking to cure not treat… please help me understand this TNBC can this be cured?
1476 posts since
14 Dec 2018
Hi,
triple neg isn’t a death sentence, if the doctors are looking to cure then cure it is. I know plenty of ladies with triple neg and they are living long lives. The internet only seems to give worse case stats, it never tell you all the good news about how many survivors there are out there.
while admittedly triple neg has fewer targeted therapies and is a “tough” one your mum will be monitored closely, if anything crops up it will be spotted and dealt with ..
I know it’s hard but take heed from the doctors, try not to google…it will only drive you nuts xxx
10 posts since
5 Feb 2020
Hi Maryln,
tha ls for the poaitive comments, makes me feel a little better. Ita such a confusing thing this cancer, its bloosy horrible for every ai gle one of you…. amazing springs to mind. You ladies are bloody amazing….. they did tell me stop googling it but you just do dont you.. i think weve got this
1476 posts since
14 Dec 2018
This forum was a god send for me last year, I’ll never forget the ladies reaching out to me, it made the whole thing more bearable somehow….it’s nice to pay it forward…
your mum is in the best hands…she’ll be looked after and monitored closely….
where in the country is she? I’m in Shropshire and my care has been top class…xx
10 posts since
5 Feb 2020
Its been great, for me too. Ive even set a twitter page up documenting my story in some werid way make me understand whats happening. If i have a bag day i take to twitter ♂️ Shes based in essex southend. The doctor seems really positive but its just a scary thing as you know xx
20 posts since
17 Mar 2019
Hi Smithy94,
My mum was diagnosed in Feb last year with TNBC. My advise to you is to not look into what the internet says as its mostly generic infomration you’ll find. Each case is unique and best handled by the team looking after your mother.
I know its a very worrisome time and your just trying to find the right answers, i went through it too. The most important thing is to leave her care in the hands of her doctors, keep your mum positive and supported and make sure she takes plenty of vitamin rich food especially vitamin C & D as this will help her through her treatment.
Make sure you check with her onchologist or hospital pharmacist if she can have supplements as they may interact adversely with her medication.
Take her to the park and for walks when shes feeling a bit better and avoid oily/spicy food.
I know every case is different, but just take it a day at a time, and remember to also take care of yourself aswell. Ill be happy to help if you want a chat.
Sending you hugs xx
10 posts since
5 Feb 2020
Hi Sarah,
thank you for that. Its a scary time isnt it, youve been there. Hope your mum is ok, ita very kind of you for chatting thank you.
people who have this horrible disease are amazing, and so are there carers, i never like anyone else wanted to be on this journey but your all bloody amazing.
thank you sarah
☺️
85 posts since
8 May 2019
Hey, I have a journal that I started when I was diagnosed, right through to now. I have beaten this awful curse, still having radiotherapy as a precaution.
I will seal it once that’s done in March and go back to it in a few years to see my ramblings, like others have said Google doesn’t tell all the facts everyone has their own battle, all the best xxxx
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