Ovarian detmoid cyst

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1 posts since

24 Jun 2019

Hi, I stumbled on this forum by pure chance!

i was diagnosed with a ‘small’ ovarian dermoid cyst nearly 2 years ago.  I already have polycistic ovaries and my mum had ovarian cancer (made a good recovery).

my concern is that nobody is checking on my cyst or really that bothered and I have read they can turn nasty, which does concern me.

We’ve got a bit of cancer history (but it’s all recent), my mum, my aunt (mums sister breast), my cousin (breast, same as her mum) and now my younger sister has been put on tamoxifen due to breast changes and she had a radical hysterectomy, her specialist recommended it.  

My older sister and I asked about family screening, which our GP referred us for, but we received a reply – basically as they all survived, we weren’t eligible for screening/testing.

sorry for this long (boring) post

Thank you 

335 posts since

1 May 2018

Hello and thanks for posting on the forum,

I am sorry to hear about your families history with cancer and also your own concerns.

In deciding not to carry on monitoring your cyst the doctors would have taken in to consideration your age, the size of your cyst and the fact that you were premenopausal.

Dermoid cysts tend to occur in young women.  Most cysts that occur before the menopause are not cancerous.  I think that there is a very small percentage of 1-2% that can become cancerous  The fact that your cyst was very small and dermoid cysts can grow quite slowly would mean the chance of it becoming cancerous would be quite small. There is some information written by the RCOG (Royal College of Obstetricians and Gynaecologists) that you might find quite helpful to read.  Have a look here

The NHS have also written some information about ovarian cysts which you can look at here

As I am not a genetic specialist  it is difficult for me to assess why you were not eligible for screening.  The NHS have some information about predictive genetic tests which you can read about here

Cancers due to inherited faulty genes are much less common than cancers due to gene changes caused by ageing or other factors. Most cancers develop because of a combination of chance and our environment, not because we have inherited a specific cancer gene. 

We do have some information on our website about this subject.  Have a look here

If you are still concerned you could go and have anther discussion with your GP about your different concerns.

I hope that this has been helpful. If you would like to go through any of this please do give us a ring.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Best Wishes,

Catherine

Ovarian detmoid cyst

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