Invasive Ductal Carcinoma – just diagnosed aged 39
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* To protect your identity do not use your full name.
30 posts since
22 Mar 2019
Hi all
Was diagnosed today with an invasive ductal carcinoma, grade 2, ER+. Lumpectomy should be 16th April, then 4 weeks radiotherapy plus tablets. Also chemo if it’s spread – so far lymph nodes appear clear so fingers crossed. Would love to connect with anyone who has been diagnosed with similar, so we can support each other plus share experiences!
55 posts since
8 Mar 2019
Hi- I’ve recently been diagnosed with the same so know how you are feeling – I’m 32 and my opp is 10th of April followed by chemo and radiotherapy- do u know what your opp will be yet? It’s all a whirl wind isn’t it- I hope you get plenty of support on here – it’s deff the right place to be.
sending you lots of positive thoughts
amanda
30 posts since
22 Mar 2019
Hi Amanda, thank you for your message. I’m sorry to hear you’ve been diagnosed too. My op is 16th April so thankfully not too long to wait. It’s certainly a whirlwind, I’m not sure that it’s really sunk in yet, but I’m handling it better than I thought I would (so far!).
I hope your op and treatment goes well, sending you positive thoughts too.
Andrea xx
55 posts since
8 Mar 2019
Yeah I know the feeling Andrea, it hasn’t sunk in for me either- I don’t know if or when it will to be honest as it’s all so unexpected isn’t it. Keep us updated with your opp and treatment – hope it all goes ok Hun
xx
30 posts since
22 Mar 2019
Yeah, it’s been a huge wake up call for me – no family history of cancer, non-smoker, not a big drinker, fit, healthy, never been overweight. But it goes to show it can happen to anyone!
Thanks, will do – keep us updated with how you get on too. We’ll get through this xxx
55 posts since
8 Mar 2019
That’s so strange as I could have wrote the above myself as I’m exactly the same – I breast fed my little girl too which is meant to decrease chances – just shows eh xxx
14 posts since
15 Mar 2019
Hello
I was diagnosed with grade 2 invasive ductal back in february and i had a lumpectomy and sentinel node biopsy on 5th march, mine has unfortunately spread to my lymph nodes and i start chemo on 16th.april. im waiting results of bone scan and ive got CT scan next friday to check if its spread. Im positive on the outside but inside im in pieces. Im fit and healthy, i run 3 times a week and ive never smoked its so scary this can happen to absolutely anyone xxx
61 posts since
2 Mar 2019
It is so scary especially when we try to look after ourselves. But, that in itself will help us beat this cancer. I breastfed each of my children for a year and thought my chances would be lowered.
I know how you feel up one minute, full of hope, then the dreaded down days. Mine has also metasticised to lymph nodes and I am having complete clearance on Wednesday. After that chemo and radiotherapy plus ten years tamoxifen. I have been down because I can’t stop going to google. This evening I looked at MacMillan videos of chemo, radiotherapy and yes, couldn’t stop myself, Advanced Cancer. I felt better. Chemo doesn’t feel so dreadful as I thought and radiotherapy not as bad as I was imagining. Because I gave up google and spent time on MacMillan I feel I am so looking forward to starting treatment.
I know I’ll get down again but I’ve made a promise to myself to only look at Cancer Research and MacMillan sites.
We are all going to get through this. We are all on different stages of a shared journey but here for each other. We understand and share so much with people we’ve never met but we know are our biggest supporters.
Xxxxxxx
9 posts since
31 Mar 2019
Hi all ,
me too I’m 39 and I knew about it January 4th I did lumpectomy and waiting for radiotherapy but I have been adviced fro do mastectomy as I have DCIs also but the surgeon who did surgery to me told me lumpectomy with radiotherapy and hormonal t will be the same effect , im afraid and overthinking about it
30 posts since
22 Mar 2019
Hi there, I’m so sorry to hear this. I really hope you get a good result form the bone scan. It’s all so scary. I also hope that the chemo and CT scan goes well. It really does go to show that it can happen to anyone, yet its so frustrating as we’re always told to keep fit and healthy to try and avoid cancer. On the plus side, I believe that being fit and healthy will help us get better, so stay strong xxx
30 posts since
22 Mar 2019
Google really is the worst!! I’ve successfully managed to ban myself from it so far, and like you, stick to Cancer Research and Macmillan. I always feel so much more positive after being on here – even though my heart breaks for everyone else going through this, it’s reassuring to know none of us are alone and we’re all here for each other xxx
30 posts since
22 Mar 2019
Hi, I ‘m sorry to hear that you have this too. Its all very scary and so easy to overthink things. I was told that the effect would be the same as well, so here’s hoping. Please keep us updated on how you get on xxx
753 posts since
3 May 2018
Hi there,
I’ve been a bit quiet of late due to side effects of treatment, but just saw your post and wanted to say hi.
I was diagnosed last year as stage 3C at 41 years of age so, like others, understand what you are going through. I’ve found this place an amazing support and hope that you do too as you go through treatment and learn more about what will happen.
Haven’t been able to have radiotherapy yet due to the spread but well versed on chemo, hope you don’t need that though.
Big hugs,
LJx
30 posts since
22 Mar 2019
Hi
Thanks so much for your reply. I’m so sorry to hear you’re having trouble with the side effects of your treatment.
I’ve found this forum so helpful, and its so reassuring to know that I can just come on here and connect with others who are going through the same thing. Everyone has been a tremendous support so far.
Best of luck with everything, I hope any remaining chemo treatments go well.
Andrea xxx
36 posts since
14 Mar 2019
Hi
I hope you ladies don’t mind me joining your conversation. I am 37 and was diagnosed on the 20th March via ultrasound and biopsy. I have been told high grade dcis with a small area of grade 2 invasive Ductal carcinoma. Hormone receptor positive and her2 borderline ( so they are retesting) I don’t really understand what all this means… and am trying to make some sense of it all which is really hard! I had an mri this last Monday and am waiting for the results for the next step.
I am really scared of what’s to come and am finding it hard to cope.. I desperately don’t want chemo ( I suffer from a phobia of vomiting).
sorry this is all coming out so negatively.. I’m having such a down day today.. all this waiting is like torture! I am convinced it’s spreading.. anyone else feel like this or am I going nuts!
xx
Invasive Ductal Carcinoma – just diagnosed aged 39
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